Michelle Davis-Wingate

The non-profit company is based in Oviedo, FL. The organization serves as a resource hub offering education, advocacy, and support for patients, families, researchers, and healthcare providers. It funds research initiatives, maintains a patient registry, supports clinical trials, and awards research grants to advance understanding and treatment of FOP. The association provides patient and family programs focused on healthcare management, emotional well-being, independence, and quality of life, and fosters community connection through gatherings, support groups, webinars, and newsletters. It also promotes advocacy and awareness campaigns and collaborates with pharmaceutical partners and research institutions to facilitate clinical research and informed patient participation in trials. The International FOP Association, Inc. is a nonprofit organization founded in 1988 dedicated to supporting individuals affected by fibrodysplasia ossificans progressiva (FOP), a rare genetic disorder.